The Meaning of Look Mom
Growing up, my sisters and I had a habit of saying “Look, Mom!” whenever we saw something beautiful like mountains, oceans, sunsets, or anything that amazed us. It was our way of sharing wonder with her. We shared everything with Mom: photos, memorable moments, and even silly things that made us laugh.
Even now, after losing her, we still catch ourselves saying it, sometimes out loud, sometimes in our heads, as if she’s still right there with us.
When we travel or witness something breathtaking, we still say:
“Look, Mom…”
Because in our hearts, she’s still part of every beautiful thing we see.
Why This Project Exists
In 2022, my mother passed away from Dermatomyositis, a rare autoimmune disease that is still widely misunderstood and underrepresented. Her story, and the pain of navigating a broken healthcare system, caused me to speak out, document, and advocate.
Look Mom is a living tribute.
It’s a personal archive, a place of healing, and a platform for awareness. It’s my way of turning grief into purpose.
Meet Ali Gutierrez
I am a nurse, PhD student, and healthcare advocate. My experiences as Lulu’s daughter, caregiver, and a nurse have shaped my interest in storytelling, listening, and the human experience of illness.
Today, I share my mother’s story through advocacy, public speaking, and community engagement while continuing my doctoral education.
At the heart of my work is a simple belief: The most powerful force in healthcare isn’t a textbook. It’s a story.